Whirling dervish, fidgety, ants in your pants, whatever way we refer to it, our daughter is always on the go.

From the moment she wakes up, she is alert, there is no rubbing of eyes, stretching and lazily emerging from the fog of sleep. Instead it is 0 to 60 faster than a Porsche. Unfortunately she thinks everyone else has the same abilities and so my hubbie and I rely on quite a lot of caffeine. It must be a real sight in our house first thing, two yawning grown ups stumbling to function while madam is already on her 16th request of the day.

It isn’t just the physical movement that I see out of the corner of my eye all day long, but the verbal onslaught that accompanies her wherever she goes – a glorious diatribe that to be honest, she requires no one else to give input on.

Sitting down for more than a few mins is optional, jumping about is necessary and muttering to herself is becoming more frequent. Her gorgeous brain is always firing, always seeing, interpreting, noticing and trying to understand all that goes on around her. It must be exhausting (watching it certainly is).

There are only three occasions when she is ever still: getting her faceĀ painted, watching telly and sleeping. Telly is her switch off; the fidgeting stops, her body relaxes and she is still, yes, still (face painting when she was little had the same transcendental effect). Each night when I got to tuck her in when I go to bed I creep in to her room by the light of her lava lamp (best purchase ever) and watch this still, peaceful angel gently snoring. She looks utterly angelic, happy and calm and I thank my lucky stars her body and brain gets this respite every night.

P.s the photo above was taken in a second of calm whilst watching a very large digger truck out of the hotel window!

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3 thoughts on “Perpetual Motion Machine

  • February 17, 2016 at 10:15 pm

    Emily’s ASD is different. She sleeps well and needs as much sleep as she can get but getting up and waking up +the thought of the unavoidable social stresses she knows is at school are what causes her ‘bad mornings’ when they do happen. Finding out what the triggers are is so so sO much more difficult than I could have ever imagined, it’s such a process of elimination- I find. I only know I’ve got it right when I’ve supported her whilst saying this is what I think it is and she’s gone from an angry child to thinking and then holding me while she breaks her heart crying and then the world’s Ok again, suddenly she can do what was nothing short of what would have been a nightmare morning in a ‘just fine’ manner. Her world is fixed from crumbling around her.

    Emily’s not the high functioning you mentioned above much at all. She is actually what you could call lazy. She understands what she needs to do to be fit and healthy and she does her best but no, she would absolutely rather not. Emily’s thoughts are brilliant and she’s really good at making or doing anything she puts her mind to and this is a real Blessing, I encourage her and emphasise how well she does and how she can do anything. She also needs peace but she can and does do fantastically.

  • February 24, 2016 at 11:27 pm

    My son is 11 years old and is the same , constantly on the go 24/7 , except when sleeping , full of energy . We are going through the ASD route currently but it’s taking a lot longer than expected . I will get up still half sleeping and he’s up and dressed and non stop yaps my ears off, (what’s happening today , are we going out ? What time are we going out? How long will we be? Are we going anywhere after ? How long will that take ? Can I take my iPad ? And the rest ). there has been a few time s I have had to say to him give me 5 minutes till I wake up . I was always aware of his energy from a young age . School from the stage of p4 has been difficult for him to the point were bulling was involved and stress levels were so high he started with facial ticks through anxiety . It’s taken to p7 (currently ) for the ticks to have dissolved and happen very rarely now but they do return . School has tried supporting him but when teachers and staff aren’t trained in ASD it’s very hard for them to understand his needs especially the smallest of things like , the class is too noisey he can’t concentrate then he would get singled out because he would complain about it . He will take a comment to heart even though they may have been joking or the opposite he may find something funny but yet the other person won’t see it the same . His dad struggles like the rest of the world with my sons different ways of being . It’s a struggle , hard trying to find ways to help with my son and help teaching my son . He’s very much a perfectionist in what he likes to do and likes to follow rules but some times doesn’t understand why others can’t follow them .

  • February 25, 2016 at 8:43 am

    Hi Amy – thanks for commenting. I agree it is a huge struggle getting people to understand the requirements of an individual child. The process is indeed a long one – stay in touch.

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